Comparing Different Types of Breathing Support for Hospice Patients with ALS

Principal Investigator: Dr. Elyse Everett

Amyotrophic lateral sclerosis (ALS) experts at Washington University are conducting a study to compare different types of breathing support (called non-invasive ventilation) for patients with ALS who are on hospice. This study includes both hospice patients with ALS and their care partners (usually a family member or friend) who provide feedback on patients’ symptoms, experiences, and overall quality of life. To be eligible to take part in the study, individuals must have ALS, be receiving care from one of our partner hospice agencies, and must enroll with a care partner who also agrees to participate in the study.